school

UM E-Theses Collection (澳門大學電子學位論文庫)

check Full Text
Title

利害相關者對澳門設立公益性臍帶血庫看法研究

English Abstract

Background: In recent years, whether in television, prenatal seminar and exhibitions, parenting books, cord blood storage advertising are common. This is an opportunity for a baby to store his or her own umbilical cord blood once in a lifetime. Many prospective parents are considering a storage service before their baby is born. The decisions have to be made, because there is no chance to miss! No wonder why parents are seriously considering to store umbilical cord blood service for future use. Objective: In the medical point of view, the greater the storage capacity of the cord blood bank, the more chances to increase successful pairing in the treatment. Therefore, if a public cord blood bank established by the government, it is not only the opportunity to rescue anyone in the public, but also a great chance to move the medical technology and industries forward. Furthermore, the private cord blood bank may facing not enough sources, limited likelihood of use and the majority support government-lid cord blood bank. The most important reason for the community easy to find opportunities for pairing, and better able to make a good use of umbilical cord blood in medical treatment. The main purpose of this study was to explore the views of stakeholders on the establishment of a public cord blood bank in Macau. Methods: In this study, the qualitative interviews and document analysis have been used for collecting, integrating and analyzing data in order to understand the view of stakeholders establishing a public cord blood bank in Macau. The study found: The establishment of a public cord blood bank in Macau, can safeguard the health and unity of the people in Macau storing their cord blood. The use of umbilical cord blood transplant and treatment can reduce other huge medical expenses. Government could also take the pioneering for biotechnology development in order to attract talent and more foreign company investment. On the other hand, Government could established a database system to cooperate with other countries blood bank database for pairing and transfusions. However, difficulty need to be overcome like lack of medical professional, current level of medical technology has not been available for cord blood transplant, regulations has not been setup and a large amount of money requires. People not only think cord blood is a regenerative medicine, but also feel as a life-saving insurance in the future. Both Macau and Hong Kong governments have no regulatory for this industry. People in Macau mainly rely on private cord blood banks in Hong Kong. If those private cord bank collapses, cord blood will turn into waste, people in Macau will vi lost everything too. View from private cord blood companies, the cost to set up a private cord blood bank is low, may have quick returns and low barriers to enter. Macau public and private hospitals also provide cord blood extraction services to customer. Those are main reason for the investor to think about this opportunity. While an investor think to enter this industry have to consider a lot of money participating research activities, acquainting of advanced equipment and technology in order to increase competitiveness. Another main issue is small population and low birth rate in Macau. Education of acceptance may need a lot of time. Advertising will be another way to make the general public understand more. Conclusions: Consumers in Macau are generally support to establish a public cord blood bank by government. The public cord bank can be regulated by the government. The general public also encourage the public cord bank to support and promote cord blood medical research. But some people still feel the need for private cord blood bank, it is also recommended that the Macau public and private cord blood banks can be coexisted. Government needs to develop a series of related laws and regulations. Besides, establishing a database for industry standards and procedures are also important. Finally, people encourage government protects public health and enhance the level of biotechnology and medical technology in Macau.

Chinese Abstract

研究背景:近年來,電視、媽媽講座、嬰兒展覽、懷孕育兒書藉都隨處可見儲存臍帶血的 廣告,因為每個嬰兒一生只有一次機會儲存臍帶血,所以很多準父母都需要在生產前決定 應否為自己小孩儲存臍帶血,因為錯過就沒有機會了!這種稀少性和唯一時機,難以讓準 父母對儲存臍帶血的服務不為所動及不考慮。 研究目的:在醫學角度上,臍帶血銀行儲存量愈大,愈能增加配對成功機率,亦能增加救 治機會。因此,若是由政府主導設立公益臍帶血銀行,不但能發揮救助任何人之機會,倘 需要特殊性血液樣本,政府主導的公益性臍帶血銀行更容易尋找合適的臍帶血,從而不會 阻礙醫學發展及救治生命。再者,商業模式臍帶血銀行由於來源不足夠,能接受的對象有 限,更會損害臍帶血的醫療發展潛力,因此外國現時多數支持「公益性臍帶血銀行」之論 點,其中最主要理由是讓廣大市民容易找到成功配對的機會,並在醫療領域上能妥善利用 臍帶血。本研究主要目是探討利益相關者對澳門設立公共臍帶血庫的看法。 研究方法:本研究從搜集,整合及分析各種資料運用了質性訪談法和文獻分析,了解利益 相關者對澳門設立公益性臍帶血銀行的觀點,從而找出在澳門應否設立公益性臍帶血庫。 研究發現:在澳門政府方面,若設立公共臍帶血庫可保障澳門市民健康及統一性監管臍帶 血儲存公司;甚至乎對使用臍帶血移植病患,可減少其他龐大治療開支;政府也可藉此開 拓生物技術發展,吸引人才及更多外資公司投入;並且建立資料庫系統,與其他國家合作 提供臍帶血移植資料庫搜尋、進行配對選用,增加澳門國際上知名度,也可使更多有需要 的人受惠。但因澳門人才缺乏,且現時醫療技術水平還未配合可進行臍帶血移植手術,法 律空白,且儲存臍帶血需要大量金錢。而對消費者方面,他們對臍帶血的再生醫學發展充 滿希冀,亦覺得可作為一份生物保險。但因現時澳門及香港政府亦沒有監管、澳門主要倚 靠香港私人臍帶血銀行儲存,如私人臍帶血庫倒閉,臍帶血變為癈物,造成澳門市民損 失,追究無門。而私人臍帶血公司方面,成立一間臍帶血庫成本低,回本快;入行門檻 低;法律監管不完善;澳門公營及私營醫院亦可提供抽取臍帶血服務;令消費者更加不可 錯過機會。並且現時私人臍帶血庫公司同時推廣既有公益及自利『存捐互利』形式儲存臍 帶血,為了擴大公司業務更提供更多樣性幹細胞儲存給消費者。不過私人臍帶血銀行需要 投入大量資金參予科研活動,以及購置先進儀器及技術,增加競爭力;但澳門人口少,臍 iv 帶血服務收入可能不足以開支,令投資者卻步;同時需面對出生率下降,傳媒負面報導, 投入大量廣告,同業競爭。 研究結論: 澳門消費者普遍支持臍帶血由澳門政府主導成立公益臍帶血庫,市民可直接監 管政府對整個臍帶血產業運作,以及政府可帶領支持及推動臍帶血的醫學研究;避免造成 社會資源浪費。但因部分市民仍覺得需要私人臍帶血庫,所以同時建議澳門政府公益及私 人臍帶血銀行可並存,故政府需要制定一系列相關法規、產業流程標準規範及建立資料 庫;保障澳門市民健康及提升生物技術和醫療技術的水平。

Issue date

2015

Author

劉敏芝

Faculty

Institute of Chinese Medical Sciences

Degree

M.Sc.

Subject

Biotechnology industries -- Macau

生物科技業 -- 澳門

Fetal blood

胎兒血液 臍帶血

Medicinal Administration -- Institute of Chinese Medical Sciences

醫藥管理 -- 中華醫藥研究院

Supervisor

胡豪

Files In This Item

Full-text (Intranet)

Location
1/F Zone C
Library URL
991001883059706306